The times are ripe:
- to update the dedicated kit, as it is obsolete
- to articulate the update itself as an exemplary process of involvement, of public informatio
Uniamo F.I.M.R. thus proposes a double action of :
- systemic empowerment
- public information and awareness.
The tried-and-tested innovative approach of an inclusive scientific community, the same path of updating, will be fundamental to transform the activities of the EBW 2018 into an exemplary experience of systemic empowerment.
In fact, two public debate events will be scheduled, with the new PlayDecide kit on extended neonatal screening as a springboard:
the kit itself will be validated,
and we will ask ourselves how the collaboration between patient and citizen associations, scientific societies, screening centers, industry and research institutions, can and must create that virtuous circle predisposing the conditions of possibility for a quality life, with diagnosis and therapies validated and accessible.
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